Wednesday, 21 November 2012

Brian Rattner and Other Parents Raising Awareness About Angelman Syndrome

Brian Rattner and other parents of special needs children recently announced plans to raise awareness about Angelman Syndrome. Angelman Syndrome is a neurological disorder that occurs in one in approximately 15,000 live births. Characteristics of the rare genetic birth defect include developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals afflicted with Angelman Syndrome require a lifetime of care. For parents, siblings and relatives caring for a child or family member dealing with Angelman Syndrome it is a test of faith and love.

“My wife and I believe in helping our children realize their full potential -- we focus on what our special children can do, rather than what they cannot do,” says Brian Rattner a resident of Westchester County, New York and a father of two severely handicapped children, “as a parent, you begin to appreciate the small things, a smile, a laugh, holding your child’s hand – it is humbling and inspiring.”

Brian Rattner and other parents are giving time and money to support The Angelman Syndrome Foundation to advance the awareness and treatment of Angelman Syndrome through education and information, research, and support for family members and individuals suffering from the disorder. There are four known chromosomal abnormalities that affect one of the two number 15 chromosomes contributing to Angelman Syndrome.

Since 2005, the Foundation has awarded $4.5 million in research grants and hosts a biennial conference for family members and other interested parties to hear the latest research results, therapeutic techniques, educational strategies, long-term planning and financial-planning information.

“We believe that our commitment and support will lead to new research and medical developments that could better the lives of individuals suffering from severe physical and mental handicaps,” says Brian Rattner, “we will not stop until we find a cure.

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